Pure Joy

I got to be party to pure, absolute joy this weekend. I have seen such displays on television after a big win in sports or gameshows. This time, it was my little girl who celebrated. After so many losses in the past six months, it was a much needed win.

As a parent, one of the worst things about cancer is being totally helpless. We are forced to sit and watch as one thing after another is taken away from our little girl. Ballet, plays, school, vacations, little things and big things are plucked away as she lays in bed.

Wonderful organizations are out there to give back to these kids. Groups such as the Make-a-Wish Foundation come beside them to give them something to look forward to during their treatment. A very introspective child, Kylie debated long and hard over her wish, finally deciding she wanted to see Aladdin on Broadway.

A few weeks ago, Kylie was asked to be the honored child at Make-a-Wish Georgia’s annual fund-raising Wish Gala. The chairperson of the event took her on a shopping spree for a gown. This day of shopping was unlike any that my girls have been on – especially Kylie. As a fourth child, hand-me-downs are the rule of thumb. If it isn’t obscenely high or dragging the ground, it fits.

Not this time. She was treated like a princess. After a six month hiatus, I saw her old friend, “excitement” start to creep back into her life.

The big night came. We all got dressed up for the Gala.

gala

 

She knew she was going to sing with her sister. She knew I was going to speak. She thought of herself as the entertainment and the face of wish-children for the evening. What she didn’t know was that Make-a-Wish had planned a big surprise for her. They had a video from her favorite Broadway performers who granted her wish to go to see Aladdin. Here is her reaction:

 

 

Priceless.  Pure Joy.

After so many months of seeing her disappointed, I can’t look at that video without tears.

You might be wondering if I embarrassed myself and my family in front of the trendier set. I believe the answer is no. With a stern admonition from the start, I spent the evening minding everything I did and said carefully. I paused three seconds before any word escaped my lips. I didn’t spill or break anything. My online tux-buying escapade was made unnecessary by a friend exactly my size who owns a tuxedo. I did not step on anyone’s dress or trip on my way to the stage. I didn’t try to fit in by discussing the beach chalet I own in Vermont.

It was a lovely evening. Kylie was the star…. And she deserves it.

 

Oh Dastardly Key Fob

Who would have thought a 5k race could nearly lead to an arrest? I guess if you’ve been reading my blog long enough, you’ve figured out I can blunder my way into anything.

So it was Sunday when I ran a 5k for a benefit. The issue was not the run, I breezed through that with a typical mediocre time. The problem was that my daughter was one of the benefactors of the event and we needed to stay a long time after. A run on humid day for one who sweats profusely can lead to smells that disgust even my dog. I needed a change of clothing before I could reenter society.

Unlike most of my life, I planned ahead and brought a few towels along with a change of clothes. The race was held in an upscale shopping center that didn’t seem to accommodate porta-potties or any other proper facilities for a sweaty runner to disrobe. I couldn’t traipse through a fine dining establishment, dripping along the way and my planning stopped just short of a reconnaissance walk to find a bathroom.

Here’s where things went awry – the only thing I could think of was the back seat of the mini-van. No problem, I had towels that could allow me to be properly covered the entire time. When I got in the backseat, I looked around and noted I was in full view of the patio of three crowded restaurants. Again, no problem, the windows are tinted.

My problem? The key fob. Some people butt-dial and make innocuous phone calls. Not me. No, that’s not nearly stupid enough. No, I butt-press both sliding doors to the van open while I’m well into the disrobed portion of the clothes change. Fortunately, my posterior wasn’t into multi-tasking and didn’t hit the panic button.

There I sat, wide-eyed under a towel wondering why my display coincided with the dismissal of church leaving a sea of blue-haired ladies waiting for tables at the nearby restaurants. Members of the local fire department, who were standing by in case of a race emergency, took note of me also and began speaking into their radios. The police couldn’t be far behind.image

 

I fumbled for the elusive key fob, cursed myself for laying it on the seat, and closed the doors. In a matter of seconds, I threw on my new set of clothes and wound my way through the gaggle of old women with my head held high. During the rest of the afternoon, I kept a paranoid eye out for the long arm of the law that was sure to be clamped on my shoulder at any minute. But it never came. The firemen must have been phoning friends to laugh about my situation and not alerting the police.

In today’s day and age, these things aren’t ever over. Someone could have been fast on the draw with video and my hiney might be splattered on Youtube. Until then, let me give you some advice – if you are doing something dicey in your car, know where your key fob is at all times. Those things are evil!

 

 

What are they Missing?

Running under a beautiful sunrise recently, I recalled a fond memory of my oldest daughter. When she was pint-sized, we figured out that she had never seen a sunrise. I know that sounds impossible, but our property lies in a valley where trees filter the sun until it is mid-morning and by then, the spectacular colors of dawn have faded away.

To remedy this, I woke her very early and the two of us went to the top of our street with lawn chairs to watch the sun peek over the horizon. It took three attempts to get a masterpiece. I remember seeing her tired, little face come alive in awe of the burst of reds and purples in the sky.

Red_sunrise

Don’t you love watching someone enjoy beauty, nature, or art for the first time?

 

This got me wondering, “What else have my kids missed?”

I know there are plenty of great movies my kids have never seen because I am not allowed to suggest films since The Great Jumanji Debacle of 2005. I built that one up to my family when they were far too young and I totally forgot some extremely spooky scenes. My third child didn’t sleep for weeks and still has nightmares about monkey boys attacking her.

Being a child of the 70’s, I have tried to share some good music with them. While I love AC/DC, Led Zeppelin, The Doobie Brothers, Van Halen and KISS, my kids weren’t fond of ringing hell’s bells and didn’t seem to want to rock and roll all night.

There were other good things from the seventies, though? I could share something else.

Mood rings

Awkwardly short gym shorts

Rotary phones without speed dial

Disco

Hair parted in the middle with wings

Bell bottoms

Car windows with cranks

Vinyl records

Ice cream trucks

Black & White TV’s with 3 channels

 

I made a mental list of these things. Although each brings back some fond memories for me, most of them have been improved upon. My kids are experiencing better versions, which made my list no less nostalgic for me, but not full of things they are poorer for missing. Frustrated with my inability to come up with much, I settled on one thing that every child needs to experience and mine had missed – until now.

Mooning! They had never been mooned. Well, they hadn’t until I thought of it. I spent the better part of the rest of that Saturday surprising them all over the house. Full moons, partial moons, waning crescents. I got them over and over. I doubt my celestial display was as majestic as the sunrise my eldest enjoyed. They giggled at first, but soon tired of it, locked their doors, and left me alone to come up with something else to share. All I could think of was streaking, but felt like my wife would be vehemently opposed to that one.

So I think we are going to put the 70’s to rest around here and let my children’s vision recover. After all the mooning, number three is having Jumanji-like nightmares again.

 

 

Photo credit: “Red sunrise”. Licensed under Creative Commons Attribution-Share Alike 3.0 via Wikimedia Commons -

What I Learned About My Wife This Year

It is fitting that I spend this day, my 22nd wedding anniversary, with my lovely bride at Children’s Healthcare of Atlanta. We are here together waiting for Kylie to get out of minor surgery. We have never made a huge deal of our anniversary – sometimes a nice dinner out but often just too much going on with our four children to make it work. I’m embarrassed to say there have been years when a kiss and a card is all we could muster. Suffice it to say that there will not be a banner celebration this year, either.

Year 22 has been challenging to say the least. Not in a contentious way, I am happy to report that we have never been more united. But when I review the years, this is one that I would like stricken from the record. I wish I could pull this book off the shelf and let 21 fall lazily into 23. It proves the need for the “better or worse, in sickness and in health” portion of the vows we stood up and said when I was but a wet-nosed pup.

 

anniversary

 

Even though April’s cancer diagnosis has made the year regrettable, I have learned much about my wife and our marriage. In fact, I’ve learned things I will never give back.

 

I learned my wife has a seemingly infinite supply of tears that no words of mine can dry. My shoulder has been wetted by them far too often. I wish I had a magic word to make them stop, but only time and tenderness sooth the pain.

Likewise, I have learned my wife’s care for those she loves has no limit.

I have learned my wife is the most unselfish person I know. She has put her life completely on hold this year and not voiced one word of complaint about what she is missing.

I’ve shared the boat when the storm is high and seen her reach levels of peace that can only be called supernatural.

I have seen that she can be her loved one’s greatest advocate, stopping at nothing to get what her patient needs and letting no one interfere with her.

I know that she might not remember to take her phone off silent for days on end, but she can quickly recall exact medication, doses, and the last time given.

I have found she has strength and resolve I could only imagine prior to this year.

I have seen her ignore her own pain and seek ways to lessen the pain of her patient.

Although she hates camping, I have learned that she will sleep on an uncomfortably hard couch beside a hospital bed for nights on end if someone she loves needs her there.

Speaking of sleep, I have been reminded that she needs very little and will sacrifice it completely if she is needed during the night.

With only twenty-four hours in the day and a relentless schedule of caregiving, she seems to have created time and invented special ways to make the rest of us in the family feel loved.

I now know that her faith, hope, and love are boundless.

 

All in all, I have seen God reaffirm just how blessed I am that she had a momentary lapse of reason and chose me. I always thought I would be the elderly and infirmed patient that required her care first. I wish that were the case. When I grow old and start falling apart, I’m sure I will test her patience with surprising wimpiness and irrational demands. With what I’ve seen this year, I know I will be in excellent hands.

So today, I will whisper a Happy Anniversary to her while Kylie sleeps off the anesthesia. Sometimes through sickness and tragedy we learn things. Every day this year, I have seen the tender way she cares for her girl and learned a little more about just how lucky I am.

 

 

When I get older losing my hair
Many years from now
Will you still be sending me a valentine
Birthday greetings, bottle of wine?
If I’d been out till quarter to three
Would you lock the door?
Will you still need me, will you still feed me
When I’m sixty-four